# Researchfish Award for 7267 Turing Fellowship
*Dr K Whitaker*

#### Award Title
7267b
#### Research Organisation
Alan Turing Institute
#### Funding Start Date
2019-04-22
#### Funding End Date
2021-04-30
#### Funding Value
150000 GBP

### Award Abstract

#### Lay Summary

Autistica and the Alan Turing Institute are working together to build a participatory, citizen science project to gather data on how sensory processing affects autistic people’s navigation of the world.

Numerous studies into sensory processing and autism have confirmed that autistic people experience sensory processing differences, and that this can significantly impact their lives.

One aspect which is not yet fully understood is how these differences affect the ways in which autistic people navigate different environments.

This project is to build a platform to gather autistic people’s experiences of navigating their environment at scale.
Our goals are to better understand and represent the commonalities and individual differences in autistic people’s experiences navigating the world.

We will identify the barriers they face and solutions to overcome these challenges.

The citizen scientists who contribute their data to this project will be autistic people, and their relatives and carers.

The main target audience for this work are non-autistic people, including, but are not limited to, employers, friends and family, urban planners, architects and interior designers for hospitals, schools and community spaces.

The work will be participatory from the ground up.
All aspects of the project will be designed and developed in collaboration with members of the autistic community.
The platform will be developed under a free and open source license and will be built openly from the beginning.
We commit to re-using – with credit – open source projects that already exist rather than re-inventing the wheel.

The project will follow best-practice principles in open-source development, including extensive documentation for both users and contributors as well as an open governance structure.
A diverse group of contributors of all levels of experience will be encouraged to join the community.

The data will be FAIR (findable, accessible, interoperable and reusable) and made available under a managed access agreement for future research projects.
A fine-grained consent model will be developed to support individual contributor’s personal preferences on how their data is used on the platform.
No data will be shared without explicit consent from the citizen scientist who uploads it, or from the autistic person if a relative or carer is uploading the information.

### Sections with Information

#### [ACADEMIC MEETINGS AND CONFERENCES ATTENDANCE](#Academic-meetings-and-conferences-attendance)
#### [SOFTWARE AND TECHNICAL PRODUCTS](#Software-and-technical-products)
#### [FURTHER FUNDING](#Further-funding)
#### [RESEARCH TOOLS AND METHODS](#Research-tools-and-methods)
#### [COLLABORATIONS AND PARTNERSHIPS](#Collaborations-and-partnerships)
#### [PATIENT AND PUBLIC INVOLVEMENT](#Patient-and-public-involvement)
#### [RESEARCH DATASETS, DATABASES AND MODELS](#Research-datasets-databases-and-models)
#### [ANNUAL PROGRESS](#annual-progress)
#### [ENGAGEMENT ACTIVITIES](#engagement-activities)

## Academic meetings and conferences attendance

**Conference Attendance**: Yes
**Conference Name**: AMRC Delving into Digital Summit
**Start Month**: March
**Start Year**: 2019
**Location**: National
**URL**: https://www.amrc.org.uk/delving-into-digital-summit-27-march-2019
**Primary role:** Oral presentation (not included in published conference proceedings)
**Description** The project was presented to a mixture of patients, government, the NHS, industry, and academia at AMRC’s 2019 *Delving Into Digital* summit, with a focus on the reasons to address questions about sensory processing and autism as well as strategies for participatory science. The summit was addressed to practitioners in the digital health space, and focussed on sharing technologies and innovations.

**Position of attendee** Autistica Director of Science and research associate
**Conference Name** *Autistica Discover Conference*
**Start Month** June
**Start Year** 2019
**Location** National
**URL** https://www.autistica.org.uk/get-involved/research-conference
**Primary role** Oral presentation (not included in published conference proceedings)
**Description** An annual, national research conference bringing together autism researchers, autistic people, relatives and carers to share their latest research and discuss how to make progress towards long, healthy, happy lives for autistic people.

**Position of attendee** Research Fellow
**Conference Name** OLS-third cohort
**Start Month** March
**Start Year** 2021
**Location** Europe
**URL** https://openlifesci.org/ols-3
**Primary role** Oral presentation
**Description** A talk delivered by Georgia Aitkenhead, Suzanne Iwai, Sarah Markham and Otis Smith for the third cohort of OLS (Open Life Sciences), using AutSPACEs as a case study for participatory citizen science.
Slides on Zenodo: https://zenodo.org/record/4651431.
Recording on Youtube: https://www.youtube.com/watch?v=Vizk7fni5Eo

**Position of attendee** Researcher
**Conference Name** CogX 2020
**Start Month** June
**Start Year** 2020
**Location** Europe
**URL** https://zenodo.org/record/3885494
**Primary role** Session/Workshop chair/panel member
**Description** Talk entitled "Research to empower: co-creating a citizen science platform”, delivered by Georgia Aitkenhead as part of a panel discussion hosted by Kirstie Whitaker for the “Tools, Practices, and Systems” of CogX 2020.
CogX is a Global Leadership Summit and Festival of AI & Transformational Technology addressing the question, “How do we get the next 10 years right?""
**Position of attendee** PI; research associate

**Conference Name** OLS-2 Graduation
**Start Month** Dec
**Start Year** 2020
**Location** National
**URL** https://openlifesci.org/ols-2
**Primary role** Oral presentation
**Description** Open Life Sciences is a training programme for early stage researchers and young leaders interested in furthering their Open Science skills. They provide mentorship and support to develop exceptional open projects. AutSPACEs was one such project, and a presentation of the project was delivered for the graduation of the programme.
**Position of attendee** Research associate and autistic citizen scientist.

**Conference Name**: ‘Better Science through Better Data 2019'
**Start Month** Nov
**Start Year** 2019
**Location** Local/Municipal/Regional
URL https://figshare.com/articles/media/Better_Science_through_Better_Data_2019_Programme_SciData19_/103 20056
**Primary role** Oral presentation
**Description** In ‘Better Science through Better Data’ (#scidata19) Springer Nature and The Wellcome Trust partnered to bring together researchers to discuss innovative approaches to data sharing, open science and reproducible research, together with demonstrations of exemplary projects and tools.
The Autistica project was chosen as one such exemplary project and was presented in a 15 minute lightening talk.
**Position of attendee** Research Associate

**Conference Name** Mental Health Special Interest Group
**Start Month Jan
Start Year** 2019
**Location** Local/Municipal/Regional
**Primary role** Oral presentation
Description A specialist meeting taking place in The Alan Turing Institute consisting of academics and professional practitioners specialising in using data to better understand mental health.

**Position of attendee** Research Associate
**Conference Name** 'Can opening up research help drive innovation?''
Start Month Nov
Start Year 2019
Location Local/Municipal/Regional
URL https://sustainabilitycommunity.springernature.com /posts/54545-can-opening-up-research-help-drive-in novation
**Primary role** Oral presentation
**Description** Springer Nature in association with the British Library hosted an event exploring how Open Research can support researchers with developing solutions to meet the UN’s SDGs (Sustainable Development Goals) and tackle today’s global challenges such as climate change, poverty and ensuring health and wellbeing.
**Position of attendee** Principle Investigator

**Conference Name** OLS-3 Expert Presentation
**Start Month** Mar
**Start Year** 2021
**Location** National
URL https://openlifesci.org/ols-3
**Primary role** Oral presentation
**Description** The Open Life Sciences programme provides training for early stage researchers and young leaders interested in furthering their Open Science skills.
A project researcher along with a number of autistic citizen scientists delivered a talk to upskill members of the programme in participatory and citizen science.
**Position of attendee** Research Associate and three autistic citizen scientists
**Conference Name** Autistica Research Festival
**Start Month** Jul
**Start Year** 2020
**Location** Local/Municipal/Regional
**Primary role** Oral presentation
**Description** Talk delivered for the Autistica Research Festival 2020 by Dr. Kirstie Whitaker, Georgia Aitkenhead, Craig Hall, Thomas Stanley, Chris Legg, Otis Smith and Lucinda Marsden.
The goal was to disseminate findings and values of the project with a highly relevant audience, and to demonstrate participatory science in action.
**Position of attendee** PI, Researcher, Pro Bono Volunteers and Citizen Scientists

**Conference Name** CogX 2020
**Start Month** Jun
**Start Year 2020
Location** National
**URL** https://www.turing.ac.uk/events/cogx-2020
**Primary role** Member of Committee
**Description** Presentation delivered as part of a panel discussion hosted by Kirstie Whitaker to introduce the Turing's new “Tools, Practices, and Systems” programme during CogX 2020. CogX is a global leadership summit and festival of AI and transformational technology addressing the question, “How do we get the next 10 years right?”.
**Position of attendee** PI, Researcher, Pro Bono Volunteers and Citizen Scientists

## Software and Technical Products

**Select type of technical product.**
Webtool/Application
**Short title or name for the product**.
AutisticaCitizenScience repository
**Licenced**
Yes (Open Source)
**Open Source license**
Other
**Briefly describe technical product.**
This repository holds project managemet tools, resources, and protocols for the Autistica project and provides an open audit of the project's progression and community involvement.
**Select the year that this output was realised.** 2019
**Briefly describe notable impacts.** The repository has been used for project management and to collaborate with autistic citizen scientists, offering important upskilling opportunities.
It also allows the ongoing work to be publicly available and easily shared with community members.
This supports the open and participatory values of the project.
**URL.** https://github.com/alan-turing-institute/Autistica CitizenScience
**URL** https://github.com/alan-turing-institute/AutisticaCitizenScience
**Digital ID** /
**Source Manual** /
**Publication ID** 609e4661a640e0.00782845

**Select type of technical product.**
Webtool/Application
**Short title or name for the product**.
AutSPACEs repository
**Licenced**
Yes (Open Source)
Open Source license MIT license
**Briefly descrive technical product**.
This repository holds the code for the Autistica project and provides an open audit of the project's progression and community involvement.
**Select the year that this output was realised.** 2020
**Briefly describe notable impacts** This repository is being used to develop the platform.
It includes a requirements list based on thourough community input from a diverse range of autistic participants, and issues derived from those requirements which support the platform development.
URL. https://github.com/alan-turing-institute/AutSPACEs
URL. https://github.com/alan-turing-institute/AutSPACEs
Digital ID
Source Manual
Publication ID 609e473c8daa52.54750515

## Further Funding

**Funding Scheme** Alan Turing Institute post-doc contract extensions
**Organisation Name** Alan Turing Institute
**Type** Fellowship
**Funding Currency** GBP British Pound Sterling
**Funding Amount** 80000
**Consortium Funding Amount** £37,738.99
**Reference Number** /
**Start Month **May
**Start Year** 2021
**End Month** December
**End Year** 2021
Project URL

## Research Tools and Methods

**Material Type** Improvements to research infrastructure
**Material Name** Participatory co-creation of a qualitative dataset.
**Description** The creation of the Focus Groups dataset was done using a new participatory method. A key was developed to highlight relevant categories individuals fall into as part of the dataset, a decision resulting from discussion sessions with the autistic community. The key was co-designed with Otis Smith, an autistic citizen scientist. In particular, Smith innovated a tag to distinguish between the direct and indirect reporting of experiences.
**Provided to Others** Yes
**Year First Provided **2019
**Impact Description** Diffrentiating betwen direct and indirect reporting is not a standard practice in qualitative research anaysis, but coud be a useful way of addressing a common complaint by autistic people that their experiences are often spoken about or over by others, and that this prevents them from being directly consulted and listened to.
The value of making a distinction between direct and indirect reporting has been attested to by autistic people in subsequent discussion sessions.
URL https://github.com/alan-turing-institute/Autistica CitizenScience/tree/master/community-recommendatio ns/focus-groups
Digital ID
Source Manual
Publication ID 60995324995342.41724166

**Material Type** Improvements to research infrastructure
**Material Name** Collaborative, participatory, open citizen science
**Description** Designing a research methodology which supports autistic people to participate in an empowered way in open research to co-create a citizen science platform.
This has required using a broad diversity of tools and protocols for research including tools such as GitHub, google forms, newsletters, individual Zoom sessions, co-wowking sessions, co-authoring, focus group consultations, and workshops.
It is a method of continuous experimentation and improvement. The method is described in our repositories.
**Provided to Others** Yes
**Year First Provided** 2019
**Impact Description** We have had powerful testimonials from participants involved in the project as to the impact it has had on their lives.
The platform development is underpinned by a unique requirements doc and platform design which is directly attached to recommendations for the commnuity and which is openly published on GitHub.
A diverse range of participatory collaborations have given autistic people platforms to have their voice heard and to have influence.
URL https://github.com/alan-turing-institute/Autistica CitizenScience
Digital ID
Source Manual
Publication ID 609cf736a4d871.94051081

## Collaborations and Partnerships

**Collaboration Title**
Civil Service secondment
**Partner Organisation Name**
Her Majesty's Civil Service
**Contributed Financially**
No
**In-kind contribution**
Yes
**In-kind contribution currency**
GBP British Pound Sterling
**Give an estimate of the in-kind value.**
14,000
**Contributions Made**
We have given a civil servant on the Digital Data and Technology (DDAT) civil service fast stream a six month secondment opportunity.
We have provided her with one to one mentoring, opportunities for professional development, direct ownership over tasks, access to new communities and resources, an introduction to new areas of research, and experience and support with a number of technologies and online best practices.
**Partner Contributions** The fast streamer seconded to The Alan Turing Institute has provided invaluable support in community management annd project management. She has worked strategically to provide high-level planning as well as detailed task management. Thus, via. this secondment, the civil service is providing 6 months of pro bono support from an exceptional worker which has already resulted in substantial benefits.
**Year Commenced** 2021
**Year Ended** Still Active
URL /
**Resultant Outcomes** The secondment is in the early stages, however outputs include two succesfully run community co-working sessions, a number of high-quality strategic documents for community invovlement, project promotion, and future steps; important management support; and consistently high-quality, dependable support with a number of tasks including repository management and community management.
**Categorisation of impact** Societal
**Formally Governed** Yes

**Collaboration Title** Expert contributions from CRI
Partner
Organisation Name Interdisciplinary Research Centre
Contributed Financially No
In-kind contribution Yes
In-kind contribution currency EUR Euro
Give an estimate of the in-kind value. 2000
Contributions Made We have shared our research with CRI, and provided them with a full presentation of the project and its aims by the Principle Investigator Kirstie Whitaker. We have also provided developmental internship opportunities for CRI students: doctoral students Katharina Kloppenborg and Sowmya Raja, who have both been offered substantial support and mentorship from the research team.
Partner Contributions CRI has provided us with pro bono support from two highly skilled students at a doctorl level to run user-testing and develop the platform. They have also provided opportunities to disseminate the project's work and values which has been mutually beneficial.
Year Commenced 2020
Year Ended Still Active
URL
Resultant Outcomes Openly published user testing results with diverse autistic participants, as well as documentation for how other researchers could run them. https://github.com/alan-turing-institute/Autistica CitizenScience/tree/master/community-recommendatio ns/user-tests. Presentation for CRI on "Participatory citizen science to improve autistic people's lives'. DOI: 10.5281/zenodo.3766923. Ongoing development support for AutSPACEs platform by skilled intern.
Categorisation of impact Cultural
Formally Governed Yes

**Collaboration Titl**e Fujitsu pro bono support
Partner
**Organisation Name** Fujitsu
**Department** Fujitsu Laboratories of Europe
**Contributed Financially** Yes
**Contribution Currency** GBP British Pound Sterling
**Contribution Amount** 800
**In-kind contribution** Yes
**In-kind contribution currency** GBP British Pound Sterling
**Give an estimate of the in-kind valu**e 333,000
**Contributions Made** We have provided Fujitsu with a significant amount of researcher time.
We have offered opportunities for development and upskilling for Fujitsu staff in open development, data management, GitHub, neurodiversity and participatory co-creation.
We have also given Fujitsu an opportunity to help meet their own charity partnership objective, and supported them to deliver a publiic presentation about their work for Autistica's 2020 Autism Research Festival.
**Partner Contributions**
Fujitsu have provided a team of agile developers to work pro bono on the platform.
They have supported autistic people by remunerating them to take part in discussion sessions and user testing, as **well** as hosting these sessions.
An autistic developer supported the growth of the project community by connecting researchers to an autistic group including members with diverse co-occuring conditions.
**Year Commenced** 2019
**Year Ended** 2020
URL
**Resultant Outcomes**
* 08-07-2020: “Research to empower: co-creating a citizen science platform", delivered for the Autistica Research Festival 2020 by Dr. Kirstie Whitaker, Georgia Aitkenhead, Craig Hall, Thomas Stanley, Chris Legg, Otis Smith and Lucinda Marsden. 10.5281/zenodo.3935849.
* 06-07-2020: “Participatory science to improve autistic people’s lives”, delivered by Kirstie Whitaker.
* Talk given internally to Fujitsu on working together to build a participatory, citizen science platform. 10.5281/zenodo.3931533
* Continued involvement put Autistica in a better position to renew their corporate partnership with Fujitsu.

**Categorisation of impact** Economic
**Formally Governed** Yes

**Collaboration Title** OLS for Turing
**Partner Organisation Name** Open Life Science Limited
**Contributed financially** No
**In-kind contribution** Yes
**In-kind contribution currency** GBP British Pound Sterling
**Give an estimate of the in-kind value.** 20,000
**Contributions Made** Six Turing community members led projects as part of the second cohort of the Open Life Science mentorship programme.
Malvika Sharan, community manager for the Turing Way, facilitated and delivered trainings along side the other OLS co-founders.
**Partner Contributions** Open Life Science (https://openlifesci.org/) program mentors and trains individuals and stakeholders working in research organisations who want to promote Open Science practice in their communities.
Participants of this 16-week mentoring & training program learn essential knowledge required to create, lead, and sustain an Open Science project, connect with members across different communities, backgrounds, and identities by sharing their experiences and expertise.
The complete schedule and participation guidelines of the program are available at https://openlifesci.org/syllabus.
**Year Commenced** 2020
**Year Ended** Still Active
URL https://github.com/alan-turing-institute/the-turin g-way/tree/master/open-life-science-mentoring
**Resultant Outcomes** Under the Turing’s Tools, Practices and Systems Research Program, Open Life Science has collaborated with The Turing Way to deliver training and mentoring to interested members from The Alan Turing Institute who would like to join this program with individual or team projects.
The program has been supported by a £10,000 grant from the Turing Institute to offer an opportunity to develop Open Science aspects in the projects that participants either already have been working on, or want to develop in the near future.
Mentors will be preferably selected from The Alan Turing Institute but there will be a possibility to match projects with the right mentor from their current capacity.
More information regarding the roles and benefits for the mentees and eligibility of a proposed project can be found on their website.
**Categorisation of impact** Cultural
**Formally Governed** No

**Collaboration Title** Open Humans Foundation Collaboration
Partner
**Organisation Name** Open Humans
**Contributed Financially No
In-kind contribution** Yes
**In-kind contribution currency** USD United States Dollar
Give an estimate of the in-kind value. 6000
Contributions Made The Turing research team has promoted Open Humans, grown the community, and given Open Humans opportunities for visibility and dissemination of their work and values.
Through co-working we have also helped to test the accessibility and usability of their documentatation for open source contributors.
**Partner Contributions**
The Open Humans Foundation has provided a free, secure, backend infrastructure and data management system on top of which the AutSPACEs platform can be built.
They have also provided support and guidancee throughout the project by offering expertise in data and agency, development support, answering queries, and closely co-working with us.
Being a member of their community has been invalulable for AutSPACEs.
**Year Commenced** 2019
**Year Ended** Still Active
URL https://github.com/alan-turing-institute/AutisticaCitizenScience
**Resultant Outcomes**
* Prototype platform using Open Humans backend. Repository url: https://github.com/alan-turing-institute/autistica -filemanagement-demo
* Private and public slack channels for AutSPACEs on Open Humans. 09-09-2020: The project was presented to the Open Humans community during an Open Humans community call.

**Categorisation of impact** Cultural
**Formally Governed** No

## Patient and Public Involvement

**Patient and public involvement **Yes
**The way of patient and public involvement**
* Prioritising the research question(s)
* Design of the research
* Management of the research
* Undertaking the research
* Analysing and interpreting the data generated by the research
* Writing up of the research
* Dissemination of research findings
* Implementing research findings or recommendations
****Give details of involvement of patients
Factors of success of patient involvement:
* Involving people throughout the research cycle
* Effective building of relationships and trust
* Close and effective collaborative ways of working
* Good information, training and support
* Building on existing relationships
* Sufficient resources to support effective involvement
* Enthusiasm and commitment of all involved

**Other factors to successful involvement**

**Challenges of involvement**
* Nature of condition can affect ability to be involved
* Small number of people or appropriate people are difficult to engage
* Lack of resources to support effective involvement
* Difficulty in finding appropriate ways to communicate and engage,Concerns about how 'representative' views are
**Why was involving people challenging?**
Difference made by patient involvement
Our research is fundamentally participatory, and we have actively engaged and recruited members of the affected community.
This is a community of people on the autism spectrum, their relatives, carers, and allie.
Their work has been core to a number of dimensions: determining the research question; setting the direction of the project; inputting their concerns and desired outputs; designing the methods of the study, co-authoring papers, attending stakeholder meetings, and strategising methods.
As such, their involvement has been critical to the research direction, content, and progress.
We remain committed to research for and by autistic people, and have been meticulous in ensuring diverse autistic people, including those with complex needs and co-occuding conditions, are involved throughout in a way which is respectful and empowering.
Our ongoing platform development is also rigorously based on recommendations from the community.
Furtheremore, a key research goal has been to empower autistic participants through their involvement.
There have been some highly significant outcomes for autistic individuals. Here is a selection:
* Autistic adult with epilepsy: after setbacks following illness and coronavirus disruptions, being inspired to enter into autism research, applying for a master's course, and delivering own research at a postgraduate-level conference.
* Autistic adult with dyspraxia: becoming a neurodiversity advocate at thier workplace and being inspired to apply for a secondment to The Alan Turinig Institute .
* Autistica adult and parent of autistic individual: being empowered to have her voice heard and to have a tangible impact on adjustments to environments to make them more neurodiverse in additional contexts.
* Autistic adult: found the project invaluable in dealing with mental health difficulties exacerbated by Covid-19.

## Research Datasets, Databases and Models

**Material Typ**e Dataset/Database/Collection of data
**Material Name** Focus Group Community Recommendations
**Description** A valuable dataset containing priorities and requirements of the autistic community under an open license.
This is a rich dataset containing nuanced views of diverse autistic citizen scientists.
The dataset is available at the project’s GitHub repository.
We developed guidelines for reading these documents with members of the autistic community using an iterative process.
We gave all participants the opportunity to examine the dataset before releasing it, and gave them an option to incorporate feedback at this stage about the presentation and layout of the final dataset.
No participants requested comments to be removed or altered.
**Provided to Others** Yes
**Year First Provided** 2019
**Impact Description** This dataset has been used to guide the priorities and stratgies of the project as a whole and the development of the AutSPACEs platform.
It is core to the project in that it provides rich, nuanced material from autistic people and the parents of autistic people.
This is a crucial element of participatory science as it allows the research to be tailored to autistiic people's prioritise and needs.
It also provides a record of the autistic participants' input, which is essential for both researcher accountability and participant recognition.
URL https://github.com/alan-turing-institute/Autistica CitizenScience/tree/master/community-recommendatio ns/focus-groups
Digital ID
Source Manual
Publication ID 60995074a34e32.95840444

## Annual Progress

Details of progress 01-04-2020 - 31-03-2021

### Platform Development

From April 2020 until mid-December 2020, work was ongoing with an agile development team provided by Fujitsu, Autistica’s corporate partner, who gave pro bono support.
During this time:
* Various ways of working were iterated.
* Agile/Open Source research methods were designed and implemented. * The protocols and theory were shared and explained to the team, and have been openly published on GitHub in the AutisticaCitizenScience repository.
* This phase of development gave the opportunity for important experimentation and learning.
* Accessibility research was undertaken by the Fujitsu team’s designer, Christopher Legg, whose work is openly published on the AutisticaCitizenScience repository.
Much of this is relevant to ongoing designs and can be incorporated.
This accessibility focussed research uses axshare.
* 10 sprint reports were submitted by the Fujitsu agile team.
They are published in the AutisticaCitizenScience repository.
9 videos were released in order to showcase work done on the project by the agile development team.
They are published in the AutisticaCitizenScience repository.
5 sessions of user testing were run with a diverse group of autistic users, including those with co-occurring conditions such as learning difficulties, dyslexia, and anxiety.
These sessions were done with the support of a doctoral student from CRI.
They were adapted for individuals so those with complex needs could take part.
The sessions were run virtually over Zoom, summarised, published on GitHub in note form, and used to iteratively modify the platform.
They are available on the AutisticaCitizenScience repository.
* The repository was redesigned to make it more accessible. This was done through a card sort, file restructuring, and input from autistic individuals.

December 2020 saw the wrap up and handover of Fujitsu’s work.
This initiated a new phase of design and development:
* A new AutSPACEs GitHub repository was set up under an open source license for the development of the platform.
* A README was created that includes development and project information, resources and a step-by-step guide to building the platform locally.
* A detailed Roadmap is now being produced.
* A new set of wireframes were created and then iterated. First as a sketch, and then a more detailed version created using Figma.
* To start development, an MVP or “simplified” version of that design was also created using Figma. This was then turned into a basic clickable html wireframe to demonstrate how interaction on the platform might function.
* A requirements list for the platform was created by combining multiple sources of participatory input, including focus groups, the results of user testing, the results of one-to-one collaboration work, and online feedback.
* This is published online on the AutSPACEs repository.
* A series of issues reflecting the requirements were written on Asana and moved gradually over to GitHub.
These issues are also available on Trello.
All issues worked on will be publicly visible on the AutSPACEs GitHub repository.
* A new developer who provides pro bono support to further develop the platform, was brought on board.
He has so far contributed through a combination of independent working, upskilling others, and co-working with researchers.
* An infrastructure skeleton for the AutSPACEs platform has been built using the Django web development framework, and has been successfully integrated with the backend provided by Open Humans.
This completes the first milestone of this phase of platform development.
* By May 2021, the second milestone is underway, with work still to be done on clarifying tasks in issues so they are suitable for an open source community of developers.
A project board was set up to track overall progress.
This is available in the AutSPACEs repository.
A project board was set up to track overall progress. This is available in the AutSPACEs repository.
* We were delighted to have an intern and a Google Summer of Code student join us to further develop the platform.
* Open Source components which are accessible to diverse users, user-tested, and well-documented for reuse, have been researched for potential use in the ongoing development of the platform.
* Accessibility checklists based on GOV.UK guidance have been created and built into issues so that platform releases meet these requirements.
* We have worked with autistic collaborators to redesign elements of the project management repository including the labelling of issues and milestones, to make them more suitable to autistic participants. This work is ongoing.
* An online focus group and co-creation session was run on the 30th November to understand issues and priorities concerning the platform moderation process. These discussions included a combination of autistic people, the parents of autistic people, and those who were in both categories.
* The session has now been fully transcribed (107 pages of human transcription). These will now be summarised, grouped, and shared with participants for their review and consent.
They will be openly published on GitHub in the AutisticaCitizenScience repository.
* Further interest and discussions were instigated as a result of the moderation session and engagement with researchers has continued. This has provided further insights and creates the possibility of even deeper community involvement and direction-setting in the moderation process. Two autistic citizen sciences are now leading on the moderation co-design work on GitHub using participatory co-creative methods.
* The “skeleton” code of conduct was created by combining the guidelines for the Autistica/Turing citizen science project using open source best practices, with the code of conduct developed by autistic people for the AutAngels autistic community.
This is now being openly worked on by researchers including autistic collaborators in an open Google Doc and via. co-working sessions and GitHub.
* Issues and Pull requests: from April 01 2020 - March 31 2021: 114 Pull Requestss were made to the AutisticaCitizenScience repository.
107 PRs were closed, of which 88 were merged.
291 issues were created in the AutisticaCitizenScience repository and 210 issues were closed.
29 PR were made to the AutSPACEs repository.
26 PR were closed, of which 17 were merged.
(The high number of closed PRs is due to a number of individual PR for different pages of a wireframe, which were replaced by a single, combined PR)
92 issues created on the AutSPACEs repository and 44 issues were closed.

### Software/code/tools/methods developed/released:

Methods, protocols, code, and other work as detailed above has been publicly released and is available under an open license on the AutisticaCitizenScience repository and the AutSPACEs repository.
### Outreach and collaboration

* The project was accepted into the second cohort of the Open Life Sciences leadership programme to be developed over the course of 3 months with the support of expert mentors and peers.
The project's research associate graduated from the programme on 17th December 2020.
* Outputs included an Open Canvas, a road map, a detailed project people, skills, and resources map, structuring and initiating work on a chapter for The Turing Way, and valuable upskilling and networking with an open source community.
* A highly positive working relationship was formed with the OLS mentor, who is providing ongoing mentorship to project researchers. * Contribution to The Hidden REF: The Hidden REF is a movement designed to publicly credit and support contributors to science who are often under-acknowledged.
* Based on learning gained from the participatory science, we proposed a new category of submissions for The Hidden REF called "lived experience".
* We hope it will help recognise the value participants bring to science through their personal expertise, gained through their daily lives.
* The project was submitted and accepted by the INCF to receive intern applicants for Google Summer of Code. An exercise was created as a GitHub issue to assess applicants’ ability to work on the platform and understand the complexity of the project. Two applicants completed our assessment. We are delighted that a GSOC student has met our requirements and has now been accepted to join the project over the summer.
* Bi-weekly community meet-up and co-working sessions were set up.
These involve collective discussion and group work among a diverse group of participants, including researchers, developers, and autistic citizen scientists.
Additional outreach efforts and accommodations have been made for those with co-occurring conditions, such as autism and anxiety, autism and dyslexia, autism and learning difficulties and autism and dyspraxia.
A highly skilled civiil service fast streamer who joined in April has now been able to begin succesfully leading these meet-ups, as well as more generally the community management of the project.
* Work is ongoing on a chapter for The Turing Way on Participatory Science, using AutSPACEs as a case study.
The chapter is being co-written with autistic researcher and strategist who joined the projcet as a citizen scientist.
* Findings and learning from the project have been shared with groups throughout The Alan Turing Institute.
A participatory science co-working group was set up with researchers from Google DeepMind and learning from the project was shared with members.
Findings and learning from the project have been shared with groups throughout The Alan Turing Institute.
A participatory science co-working group was set up with researchers from Google DeepMind and learning from the project was shared with members.
The project's research associate became a co-lead of the Social Data Sciences Special Interest Group and has presented this project with group members, as well as a facilitating collaborator from The Open Humans Foundation to share knowledge with The Turing.

## Participatory Science
We remain committeed to research for and by autistic people, and have been highly meticulous in ensuring diverse autistic people, including those with complex needs or co-occuding conditions, are involved throughout in a way which is respectful and empowering.
Our ongoing platform development is also rigorously based on recommendations from the community.
Throughout the year, there has been continued community growth.
We have had enthusiastic interest and collaboration from new autistic members, new developers, and people from within the Turing.
We have also brought on new members to help support collaboration, progress, and provide mentorship.
Ongoing collaboration has been encouraged through a combination of individual one to one sessions and group working.
Substantial voluntary contributions have been made, and individual working relationships with a number of key autistic volunteers has been maintained.
We are extremely grateful to our autistic collaborators.
* Work on the branding and communications design of the platform is being done collaboratively using the unique skills of autistic individuals.
The name “AutSPACEs” was chosen for the platform after consultation by community members.
The acronym stands for our aim of invistigating Autistic Sensory Processing for Accessible Community Environments.
* We are delighted to have received positive and often moving accounts from participants about their experience as members of the citizen science project.
* Participation has resulted in significant results for many autistic collaborators. These include: being supported through the challenges of COVID19 by being a part of the community.

## Did you have any challenges and how did you overcome them?

#### COVID-19 disruptions

* PI Kirstie Whitaker had only limited capacity to work on the project for much of 2020 due to urgent, covid-related work.
Adaptations had to be made as a result of not being able to meet in person, creating challenges for co-working, focus groups, and discussion groups.
Further, many autistic participants were impacted by anxiety due to the pandemic.

* Nature of project
A major goal of the project is to innovate new ways of conducting research so that it is open and participatory.
This means that there is a constant process of designing, learning, and refining ways of working.
We are committed to the integrity of the project through facilitating diverse autistic participation and creating opportunities which benefit them throughout the research cycle.
We are also committed to open research and open working.
These aspects can take additional time and make timelines harder to predict.
All these difficulties relate to the time taken to develop the AutSPACEs platform.
To overcome the above challenges, we intend to:
* Bring in collaborators to specifically focus on platform development and community management, so that the project can broken up into more manageable areas. This is now being implemented.
* Develop an effective onboarding process, documentation, repository, and online presence to support an open source community to easily contribute to the project.
We will use The Turing Way findings and community to do this.
* Seek more involvement of the Whitaker Lab in mentoring researchers as well as additional training.
* Extend the project research associate's contract for a further 8 months using funds from The Alan Turing Institute.
* Seek funding for the expansion of the platform given its range of potential applications.
This would be via. funding for better understanding co-occuring conditions, a key concern of autistic participants.
Securing this funding would increase sustainability and the future impact of the project.

**Has the original approved grant been spent?** Yes
**Explain the difference between expenditure and budget grant** N/A
**Final grant report?** No

## Engagement Activities

**Activity Title** “Autspaces: creating a participatory, open citizen science platform.”
**Activity Type** A talk or presentation or debate
**How many people?** 101 - 500
**Geographical Reach** International
**Primary Audience** Postgraduate students
**Other Audience** Professional Practitioners,Public/other audiences,Study participants or study members,Patients, carers and/or patient groups
**Activity Years** 2020
**Result Description** Presentation given by researcher Georgia Aitkenhead and citizen scientist James Scott for the graduation of Open Life Sciences 2, to share resources and findings with peers, build community, and to demonstrate participiatory science in action.
**Most important impact?** Audience reported change in views, opinions or behaviours
URL https://www.youtube.com/watch?v=wv8_0iOMpGs
Digital ID
Source Manual
Publication ID 60994d7ad82f39.87396136

**Activity Title** “Participatory science to improve autistic people’s lives”
**Activity Type** A talk or presentation or debate
**How many people?** 101 - 500
**Geographical Reach** International
**Primary Audience** Postgraduate students
**Other Audience** Professional Practitioners,Public/other audiences,Patients, carers and/or patient groups
**Activity Years** 2020
**Result Description** A talk for the Centre for Research and Interdisciplinarity presentinig the projct, sharing findings and methodologies, and encouraginig open and participatory science.
The talk is openly availablee on Youtube and has 124 views.
**Most important impact?** Requests about (further) participation or involvement
URL https://zenodo.org/record/3766923
Digital ID 10.5281/zenodo.3766923
Source Manual
Publication ID 609944c8c3a536.88080474

**Activity Title** 20-11-2019: "Participatory science to empower"
**Activity Type** A talk or presentation or debate
**How many people?** 51 - 100
**Geographical Reach** National
**Primary Audience** Professional Practitioners
**Other Audience** Industry/Business,Other audiences, Study participants or study members, Patients, carers and/or patient groups
**Activity Years** 2019
**Lightening talk** presented by Georgia Aitkenhead for the Springer Nature SciData19 conference.
**Most important impact?** Requests about (further) participation or involvement
URL https://zenodo.org/record/3530454#.Xoc_PxfTXx4
Digital ID 10.5281/zenodo.3530454
Source Manual
Publication ID 609bd68fa5d188.05890575

**Activity Title** 27-03-2020 Wireframing workshop
**Activity Type** Event, workshop or similar
**How many people?** 11 - 50
**Geographical Reach** National
**Primary Audience** Study participants or study members
**Other Audienc**e Professional Practitioners,Patients, carers and/or patient groups
**Activity Years** 2020
**Result Description** A workshop that brought together autistic citizen scientists, developers from Fujitsu, researchers and professional practitioners in UX design in order to co-create wireframes for the platform.
M**ost important impact?** Plans made for future related activity
URL
Digital ID
Source Manual
Publication ID 609bda323f1535.57636252

**Activity Title** 30-01-2019: "Participatory science to empower"
**Activity Type** A talk or presentation or debate
**How many people?** 11 - 50
**Geographical Reach** International
**Primary Audience** Other audiences
**Other Audience** Postgraduate students,Study participants or study members,Patients, carers and/or patient groups
**Activity Years** 2020
**Result Description** A presentation given to The Turing Institute's Data Science for Mental Health Special Interest Group to let people know about the Autistica/citizen science project and to share the project's values with fellow researchers.
**Most important impact?** Audience reported change in views, opinions or behaviours
URL https://zenodo.org/record/3743441#.XozAYxfTXxs
Digital ID 10.5281/zenodo.3743441
Source Manual
Publication ID 609bd7b21408d4.55378277

**Activity Title** Autism Awareness Day co-authored blog
**Activity Type** Engagement focused website, blog or social media channel
**How many people?** 51 - 100
**Geographical Reach** Local
**Primary Audience** Other audiences
**Other Audience** Professional Practitioners,Public/other audiences,Postgraduate students,Other audiences,Study participants or study members,Patients, carers and/or patient groups
**Activity Years** 2020
**Result Description** This was a co-authored blog by researcher Georgia Aitkenhead and autistic citizen scientist Otis Smith written for The Alan Turing Institute to promote the Autistica project and to raise awareness of autism more generally.
It also gave a platform for Smith to speak directly about his own experiences and priorities.
**Most important impact?** Own/colleagues reported change in views or opinions.
URL https://www.turing.ac.uk/blog/world-autism-awarene ss-day-celebration-and-citizen-science
Digital ID
Source Manual
Publication ID 609cf1a413a5e1.60373224

**Activity Title** British Library Project Stall
**Activity Type** Event, workshop or similar
**How many people?** 51 - 100
**Geographical Reach** Local
**Primary Audience** Other audiences
**Other Audience** Public/other audiences,Postgraduate students,Study participants or study members,Third sector organisations
**Activity Years** 2019
**Result Description** A stall was run by a researcher and an autistic citizen scientist at The British Library for National Inclusion Week to raise awareness about the project and bring people into the community.
**Most important impact?** Requests about (further) participation or involvement
URL
Digital ID
Source Manual
Publication ID 609bd1b64c4d02.72223046

**Activity Title** Community co-working fortnightly sessions
**Activity Typ**e Event, workshop or similar
**How many people?** 11 - 50
**Geographical Reach** International
**Primary Audience** Study participants or study members
**Other Audience** Professional Practitioners,Public/other audiences,Other audiences,Patients, carers and/or patient groups
**Activity Years** 2021
**Result Description** A series of online co-working and discussion session held on Zoom every fortnight.
The sessions have been organised to support the empowered involvement of autiistic participants in the project, to onboard new members, to co-work on platform development, and to ensure we are meeting commuinty priorities and engaging more widely.
Each fortnight the meetup sessions are iterated to make them more inclusive.
**Most important impact?** Decision made or influenced
URL
Digital ID
Source Manual
Publication ID 609cefa5ca7717.59002339

**Activity Title** Focus Group
**Activity Type** A formal working group, expert panel or dialogue
**How many people?** 11 - 50
**Geographical Reach** Local
**Primary Audience** Study participants or study members
**Other Audience** Professional Practitioners,Industry/Business,Patients, carers and/or patient groups
**Activity Years** 2019
**Result Description** Focus Group Session with diverse autistic participants to discuss the Autistica/Turing citizen science project along with researchers and the Fujitsu team.
**Most important impact?** Plans made for future related activity
URL
Digital ID
Source Manual
Publication ID 609bd25c4931a2.56425829

**Activity Title** Interactive Breakfast Session - Autistica Discover Conference 2019
****Activity Type** Event, workshop or similar
**How many people?** 1 - 10
**Geographical Reach** National
**Primary Audience** Patients, carers and/or patient groups
**Other Audience** Professional Practitioners,Public/other audiences,Postgraduate students,Study participants or study members
**Activity Years** 2019
**Result Description** This was an interactive session designed to demonstrate ways of getting involved in a citizen science project to a mixed audience.
Event generated productive dialogue/feedback, expressions of interest in participation, and offers of collaboration.
**Most important impact?** Requests about (further) participation or involvement
URL
Digital ID
Source Manual
Publication ID 5d15f975793c12.59278856

**Activity Title** Moderation co-creation session
**Activity Type** Event, workshop or similar
**How many people?** 11 - 50
**Geographical Reach** National
**Primary Audience** Study participants or study members
**Other Audience** Patients, carers and/or patient groups
Activity Years 2020
**Result Description** This was a moderation co-creation session designed to deep dive into the nuances of moderation with an autistic community, and emerge with greater engagement, more underestanding, as well as some concrete actions to take forwards.
**Most important impact?** Plans made for future related activity
URL
Digital ID
Source Manual
Publication ID 609bdabd7678a2.07772135

**Activity Title** Open Humans community call
**Activity Type** A talk or presentation or debate
**How many people?** 51 - 100
**Geographical Reach** International
**Primary Audience** Supporters/charitable donors
**Other Audience** Professional Practitioners,Postgraduate students,Study participants or study members,Patients, carers and/or patient groups
**Activity Years** 2020
**Result Description** The project was presented by researcher Georgia Aitkenhead and summer intern Katharina Kloppenborg to the Open Humans community during an Open Humans community call. Through this call we disseminated findings and values among the Open Humans community, speecifically around user testing, and helped to foster connections.
**Most important impact?** Requests about (further) participation or involvement
URL https://www.youtube.com/watch?v=YeVML0j8XoE
Digital ID
Source Manual
Publication ID 609949222030b1.61600884

**Activity Title** Pint of Science
**Activity Type** A formal working group, expert panel or dialogue
**How many people?** 11 - 50
**Geographical Reach** Regional
**Primary Audience** General public
**Other Audience** Supporters,Study participants or study members,Patients, carers and/or patient groups,Third sector organisations
**Activity Years** 2019
**Result Description** The project was presented in a panel discussion at the Turing’s Pint of Science event to showcase the potential of the project and routes to involvement to members of the general public, as well as encouraging dialogue around its central issues. The event generated valuable interest and discussion.
**Most important impact?** Requests about (further) participation or involvement
URL https://pintofscience.co.uk/event/empowering-autis tic-people-through-citizen-science
Digital ID
Source Manual
Publication ID 5d120ba84da142.33884253

**Activity Title** Presentation on UN sustainability goals
**Activity Type** A talk or presentation or debate
**How many people?** 11 - 50
**Geographical Reach** Local
**Primary Audience** Professional Practitioners
**Other Audience** Public/other audiences,Other audiences,Study participants or study members
**Activity Years** 2019
**Result Description** Springer Nature in association with the British Library hosted an event exploring how Open Research can support researchers with developing solutions to meet the UN’s SDGs (Sustainable Development Goals) and tackle today’s global challenges such as climate change, poverty and ensuring health and wellbeing.
A paper delivered by PI Kirstie Whitaker which included the project's values in relation to UN SDGs.
**Most important impact?** Own/colleagues reported change in views or opinions.
URL https://natureecoevocommunity.nature.com/posts/545 47-can-opening-up-research-help-drive-innovation
Digital ID
Source Manual
Publication ID 609bd3de672ff1.75887378

**Activity Title** Regular newsletters: monthly updates
**Activity Type** A magazine or newsletter (print or online)
**How many people?** 51 - 100
**Geographical Reach** International
**Primary Audience** Study participants or study members
**Other Audience** Professional Practitioners,Supporters,Other audiences,Patients, carers and/or patient groups
Activity Years 2019,2020,2021
**Result Description** We have been sending out regular updates via. monthly newsletters to the project commnuity, starting on the 8th May 2019.
So far 15 update emails have been sent.
Of these, a number contain interviews with a diverse range of autistic and non-autistic project participants.
These are carefully co-edited according to the wishes of the interviewee, so that they are a genuine representation of a diverse range of voices and types of expression.
**Most important impact?** Requests about (further) participation or involvement
URL https://github.com/alan-turing-institute/Autistica CitizenScience/tree/master/project-communications/ newsletter
Digital ID
Source Manual
Publication ID 609cf2dc73ff24.33454926

**Activity Title** Sainsbury Wellcome Centre Tea Hour
**Activity Type** A talk or presentation or debate
**How many people?** 11 - 50
**Geographical Reach** National
**Primary Audience** Professional Practitioners
**Other Audience** Professional Practitioners,Supporters,Patients, carers and/or patient groups
**Activity Years** 2019
**Result Description** Kirstie Whitaker and autistic co-author Sarah Markham presented to the Sainsbury Wellcome centre to showcase novel models of research to an audience of biomedical researchers.
It helped to build the community around the project and foster collaboration.
**Most important impact?** Audience reported change in views, opinions or behaviours
URL https://www.academia.edu/38797709/Using_Citizen_Sc ience_to_Improve_Society_and_Empower_Autistic_Peop le
Digital ID
Source Manual
Publication ID 5d120a7e78ac70.72943107

**Activity Title** “Growth through community”
**Activity Type** A talk or presentation or debate
How many people? 1 - 10
**Geographical Reach** Local
**Primary Audience** Supporters/charitable donors
**Other Audience** Study participants or study members,Patients, carers and/or patient groups,Third sector organisations
**Activity Years** 2020
**Result Description** This was a talk to update funders for the AutSPACEs project, and to demonstrate the methods being used to gather community input. It was not meant to reach a large audience, but rather to show progress to stakeholders. The talk was succesful and favourably received. Talk presented by researcher Georgia Aitkenhead in collaboration with autistic citizen scientist Otis Smith.
**Most important impact?** Audience reported change in views, opinions or behaviours
URL https://www.google.com/url?q=https://zenodo.org/re cord/3865057&sa=D&source=editors&ust=1620661131473 000&usg=AOvVaw2nEV2OcT8YJ57tzgWwAryw
Digital ID 10.5281/zenodo.3766923
Source Manual
Publication ID 609945b9563159.77133266

**Activity Title** “Participatory citizen science to improve autistic people’s lives”.
**Activity Type** A talk or presentation or debate
**How many people?** 11 - 50
**Geographical Reach** Local
**Primary Audience** Professional Practitioners
**Other Audience** Postgraduate students
**Activity Years** 2020
**Result Description** Presentation given by Kirstie Whitaker for the February Urban Analytics Meeting at The Alan Turing Institute.
Helped to form a better understanding of mutual research interests and possible connections.
**Most important impact?** Plans made for future related activity
URL https://zenodo.org/record/3661469
Digital ID 10.5281/zenodo.3661469
Source Manual
Publication ID 60994be5d90e40.19450428

**Activity Title** “Participatory Citizen Science”,
**Activity Type** A talk or presentation or debate
**How many people?** 101 - 500
**Geographical Reach** International
**Primary Audience** Postgraduate students
**Other Audience** Professional Practitioners,Public/other audiences,Other audiences,Study participants or study members,Patients, carers and/or patient groups
**Activity Years** 2021
**Result Description** A talk delivered by Georgia Aitkenhead, Suzanne Iwai, Sarah Markham and Otis Smith for the third cohort of OLS, using AutSPACEs as a case study for participatory citizen science.
This helped to upskill upcoming researchers in participatory and citizen science, thereby disseminating the project's values to an important community.
It also gave a platform for diverse autistic participants to give their perspective on research and involvement.
**Most important impact?** Own/colleagues reported change in views or opinions.
URL https://zenodo.org/record/4651431
Digital ID 10.5281/zenodo.4651431
Source Manual
Publication ID 60994e481b43f5.43665636

**Activity Title** “Participatory science to improve autistic people’s lives”
**Activity Type** A talk or presentation or debate
**How many people?** 51 - 100
**Geographical Reach** National
**Primary Audience** Supporters/charitable donors
**Other Audience** Industry/Business,Study participants or study members
**Activity Years** 2020
**Result Description** Talk given internally to Fujitsu on working together to build a participatory, citizen science platform.
Goal was to support Autistica to renew corporate charity partnership with Fujitsu as well as to share findings and values.
Most important impact? Decision made or influenced
URL https://zenodo.org/record/3931533
Digital ID 10.5281/zenodo.3931533
Source Manual
Publication ID 6099475180d2c8.90441059

**Activity Title** “Research to empower: co-creating a citizen science platform"
**Activity Type** A talk or presentation or debate
**How many people?** 101 - 500
**Geographical Reac**h National
**Primary Audience** Professional Practitioners
**Other Audience** Policymakers/politicians,Public/other audiences,Supporters,Postgraduate students,Other audiences,Study participants or study members,Patients, carers and/or patient groups,Third sector organisations
**Activity Years** 2020
**Result Description** Talk delivered for the Autistica Research Festival 2020 by Dr. Kirstie Whitaker, Georgia Aitkenhead, Craig Hall, Thomas Stanley, Chris Legg, Otis Smith and Lucinda Marsden.
The goal was to disseminate findings and values of the project with a highly relevant audience, and to demonstrate participatory science in action.
**Most important impact?** Own/colleagues reported change in views or opinions.
URL https://zenodo.org/record/3935849
Digital ID 10.5281/zenodo.3935849
Source Manual
Publication ID 609948716cd5e6.49756984

**Activity Title** “Research to Empower: co-creating a citizen science platform”
**Activity Type** A talk or presentation or debate
**How many people?** 11 - 50
**Geographical Reach** National
**Primary Audience** Patients, carers and/or patient groups
**Other Audience** Public/other audiences,Supporters,Study participants or study members,Third sector organisations
**Activity Years** 2020
**Result Description** A presentation by researcher Georgia Aitkenhead and citizen scientist Otis Smith for an Autistica webinar on: “How can we move towards a more autism friendly world”.
This was to share findings, demonstrate participatory science in action, encourage new collaborators to join, and support the project's funder Autistica.
**Most important impact?** Requests about (further) participation or involvement
URL https://www.youtube.com/watch?v=QDWpykMPxQ8
Digital ID
Source Manual
Publication ID 60994cb4c26006.15634675

**Activity Title** ”Research to empower: co-creating a citizen science platform”
**Activity Type** A formal working group, expert panel or dialogue
**How many people?** 101 - 500
**Geographical Reach** International
**Primary Audience** Professional Practitioners
**Other Audience** Public/other audiences,Industry/Business,Postgraduate students,Other audiences,Study participants or study members,Patients, carers and/or patient groups,Third sector organisations
**Activity Years** 2020
**Result Description** Presentation delivered by Georgia Aitkenhead as part of a panel discussion hosted by Kirstie Whitaker to introduce the Turing's new “Tools, Practices, and Systems” programme during CogX 2020.
CogX is a global leadership summit and festival of AI and transformational technology addressing the question, “How do we get the next 10 years right?”.
**Most important impact?** Requests about (further) participation or involvement
URL https://www.google.com/url?q=https://zenodo.org/re cord/3885494&sa=D&source=editors&ust=1620661346604 000&usg=AOvVaw1rjR8p-Pi1Hzw4S2LT6Q5x
Digital ID 10.5281/zenodo.3885494
Source Manual
Publication ID 60994664bccfd1.67021693

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