# Vision: Patient-centric health interop

Status: draft for feedback, June 2022

:::info

**Note for skeptics:** Patient-centric health interop doesn't need to be a "winning model" (e.g., by $$ or adoption ) to provide productive design pressure on the ecosystem . We can improve all forms of interop by accounting for this vision.

Considering patient-centric health interop guides us to design flexible architectural components that include: identity management, authn, authz, affirmative consent, clinical content standards, clinical knowledge standards, query- and subscription-based data access, survey based data capture, data provenance and integrity controls, confidential decision support, comprehensive public reference data and utilities.
:::

"*In this world, I have my choice of tools and support to...*"

## Get care when I need it

* Find providers based on my
* health information including just-in-time "triage" questions
* insurance coverage
* preferences
* Schedule appointments including workflow for
* onboarding to practice
* collection case history
* sharing health information
* Automate [flow of information into my own tools](#Collect-my-health-information-in-one-place)

## Manage my health

* Find **informational resources** (including [learning opportunities](#Learn-from-experts-and-peers))
* Apply **decision tools** (effectiveness, side effects, cost, time commitment, other personal preferences)
* Connect **management tools** (e.g., hypertension) with tracking, adjustment, shared decision making
* Reminders and automated scheduling for **preventive services**
* ^^All these tools keep my data **confidential and "local" by default** (stored in a platform of my choice, not duplicated)

## Learn from experts and peers
* connect with communities
* connect with clinical researchers
* understand my own health through models, tools and evaluations (e.g., risk evaluation, prognosis)

## Collect my health information in one place

* Connect and synchronize with
* provider orgs
* payor orgs
* health and fitness devices
* ^^ all with automated updates
* ^^ all with provenance and data integrity
* Longitudinal record
* Structured, unstructured
* Pragmatic standardization (most standardized at "core")
* Sharing controls

## Choose what to share

* Provision access for friends, family, caregivers
* Proactive policies for emergency care, advance directives, POLST, etc
* Choice to donate data (and attention, surveys) for research